If you have been following my blog at all you probably noticed that my rate of posting has decreased significantly. There are several reasons for this slow down but I am here to let you know that I am planning on returning to (nearly) my old form following vacation. I’m not a professional blogger, writer or patient advocate and at this stage I am still learning how to navigate social media as both a patient and a medical student. In spite of this, I want to share the foremost reason why I’ve been absent from blog posts. This is really tiring. Writing about my health and sharing how I feel about problems as they arise may come readily to some but for me these have always been closely guarded secrets. It is a great challenge to be consistently open and honest in this medium without coming across as whining – something I try my hardest to avoid.
I am not quite sure what people ‘find’ in my writing but I expect it’s a mixed bag ranging from entertainment to honest folks truly seeking a virtual community through shared, albeit negative, experiences. Regardless of why you’ve tuned in, the fact remains that this is my reality and at times I just need to figure things out before I share them with anyone else. Living, adjusting and trying to understand the health issues I go through while balancing personal and professional goals is not easy. If you’re a close reader you may have noticed the conspicuous absence of certain topics from my posts namely relationships, psychological concerns and similarly related topics. I am not trying to withhold information, I am just a fiercely independent and private person (despite writing a blog) and think that others are more eloquent on these topics than I. Connecting with others on these deeper levels is something that I am working on in my personal life and perhaps any improvements there will manifest in my writing, time will tell.
I needed a break to recharge, so what should you expect in the coming weeks. I am currently starting a large IBD related research study with a professor at my school so I do not expect that future posts will be quite at the rapid fire pace I like. So use the time to catch up on old posts! On the content side, I broadly intend to incorporate new medium (some video) and improve the clarity and quality of my writing. In addition to having a new and more organized website I have planned a series of videos including a product review and tutorials aimed at helping patients with chronic diseases to track their health data in ways that will help their physician. I have begun a post on my thoughts/experience with narcotic use for pain relief, a health update, some IBD journal club posts that I think will be of general interest and more about how IBD has affected relationships and my personality. Lastly, with the encouragement and help of a med school friend I am undergoing CCFA Facilitator training and we are starting a support group in my city, which currently has none. I firmly believe in taking steps to improve your local communities so connecting to other patients in my area is really important to me.
I just wanted to say thank you both for your kind words/emails/tweets of encouragement and for bearing with me as I adjust to so many changes in my life that were thrown at me unexpectedly. Incidentally, today I should have started my second year of medical school but oh well, asi es la vida.