1. About Me

Hello and welcome fellow patient, friend or parent of someone affected by Inflammatory Bowel Disease (IBD). I am a medical school student with Crohn’s disease and I started this blog at the behest of a trauma surgeon who guided me through my weeks in the hospital and has become a mentor and friend. She encouraged me to start blogging as an avenue to share my perspective of living with and studying disease. In the boredom of recovery I felt compelled to try to articulate my thoughts, experiences and interests to hopefully provide some insight into living with Crohn’s disease.

Strong and healthy in 2012 to spending 3 weeks hospitalized in 2014

Strong and healthy in 2012….Sick and intubated in 2014

You may be able to relate to some or many of my experiences but I hope that over time other patients, parents and friends will begin contributing to and enriching the content of this blog through comments or guest posts. I am not writing any of this to draw attention to myself nor do I think that I am “more special” than other patients, I can assure you I am that kind of person.

What I care about is increasing our understanding of life with an ostomy and/or IBD and sharing information to better educate ourselves as patients. I think that the physical and psychological challenges of living with IBD are underestimated by those without it to include many physicians. The responsibility rests on us patients to stop hiding away in pain and just say ‘screw it’ to any embarrassment. If this pattern of fear or embarrassment persists how should we expect people outside of the medical community to learn about what life is like with IBD beyond a research article?

What better time in history has there been for this kind of advocacy and education?…Remember the ALS ice bucket challenge? The successes of HIV lobbying? The power of the breast cancer movement? The IBD community should carefully look to other patient communities, particularly HIV/AIDS and breast cancer, who to their credit have essentially developed proven frameworks for changing societal views and massively increasing research funding.

You see there are good times even with Crohn's!

There are good times with Crohn’s!

My goals for the blog are as follows:

  1. Share my experiences with IBD and an ileostomy.
  2. Educate in layman’s terms about Crohn’s disease.
  3. Answer questions about life with Crohn’s disease.
  4. Give tips to patients about Crohn’s and ostomies.
  5. Review ostomy related products.
  6. Offer advice on IBD medications that I have experience taking.
  7. Seek advice from other current or future health care providers with IBD.
  8. Show PATIENTS that YOU ARE NOT ALONE.

The bottom line is that at times life with IBD can be really challenging and frustrating but at the end of the day just looking around at friends and family reminds me that life is good. So I hope that this year brings you good health and good times! I look forward to expanding this project with all of you so please don’t hesitate to contact me with questions or ideas. *Important reminder: I am not a doctor and only you and your doctor can reach medical decisions. So if you are consider changes make sure to discuss them with your physicians.

14 thoughts on “1. About Me

  1. I have been an ileostomate because of Crohn;s disease for 54 years. I am doing fine. Have been married for 48 years and have had a son after surgery who is now 46. I have about 6-8 feet of small bowel left. I still have my rectal stub. I had the usual cramping, bleeding, pain, etc. during my younger years and when I asked my original surgeon how many ulcers (we thought I had UC) I had after removing all my colon and 18″ inches of small bowel, “he said, “honey, you took your colon out to the woods and beat it with a rock before you gave it to me.”

    Although retired, I keep very busy with many activities including being editor of our ostomy support group newsletter.

    Like

  2. I can’t thank you enough for writing this blog I had my surgery 5 months ago
    Things are a bit tough for me at the
    Minute with leaks and weight issues but reading your blog helped me to see that little flicker of light at the end of the tunnel.

    For the first time in almost 6 years I’ve been able to socialise and almost be normal again, I met a girl I really like and the thought of telling her about my Illness is petrifying …
    My stoma nurse told me to keep quiet at first but I feel like I’m lying to her
    Did you have some problems?

    Thank you.

    Like

  3. Thank you you are an inspiration to others with similar problems, We are a very large Crohn’s family and we have to stick together and help each other where and when and if possible. Just a kind word at the right moment might help someone enormously. You like so many of us Crohnies possess great determination,and as you are training to be a Doctor it will give you a special insight into what it’s like to be a patient as well! Keep up the good work, hurry and get better soon as you are needed. (no pressure though!!)

    Like

    • Hey thanks a lot for reading, give me a little time and hopefully the new organization will make things run more smoothly. Looking forward to checking out your blog.

      Like

  4. As the mother of a kid with Crohn’s disease it is very inspiring (and informative) to read your blog. Thanks so much for sharing your experience and knowledge!

    Like

    • Thank you very much for reading Wendy, I have been busy with some work on my end this week hence the very little posting but I should be getting back to it soon. I am also going to try and force my mom to write a post about raising 10 kids one of which has Crohn’s so I hope to get that soon it may be of interest to you.

      Like

    • Thank you for the kind words and support. I have a lot of things planned and meetings going on so I will be adding updates to the blog as necessary so look out for that stuff. thanks

      Like

  5. You are an amazing fighter & future doctor! Thank you for writing this. I will forward it to my good friend whose 23 yr old son, a registered nurse, has been struggling with his disease flares, C-diff & resection for over a year, continuously. This is no exaggeration. May you heal and recover well!

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s